Published 19 February 2009, doi:10.1136/bmj.a3066
Cite this as: BMJ 2009;338:a3066

Practice

A Patient’s Journey

Coeliac disease in childhood

Henry W M Willis, patient1, Nichola M Willis, Henry’s mother1, George W Willis, Henry’s father1, Faisal R Ali, foundation year 2 doctor 2, Colin Ball, consultant paediatrician2

1 London , 2 Department of Child Health, King’s College Hospital, London SE5 9RS

Correspondence to: Dr F R Ali f.r.ali.01@cantab.net

doi:10.1136/bmj.b380doi:10.1136/bmj.b491doi:10.1136/bmj.a3058

An 11 year old boy explains how coeliac disease affects him, and his parents tell of the obstacles to the diagnosis

The first 150 words of the full text of this article appear below.

I don’t remember ever not having coeliac disease—my earliest memories of it are when I was in hospital and the staff gave me Jaffa cakes to eat before I was diagnosed and when I played with Lego while I was having a blood transfusion.

My nursery report says I said to my teacher after returning from being diagnosed, "I can’t eat cup cakes anymore" so I guess I understood what had happened.

It is annoying not being able to eat cake and other foods at birthday parties and other celebrations, but most of the time I don’t feel any different from other children. My primary school won’t cook me a gluten-free lunch and has stopped letting me take a flask of hot soup in my lunch box, which I miss. I hope by the time I am older there will be more gluten-free foods like doughnuts. Bakeries smell so good. . . . [Full text of this article]


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