Published 17 February 2009, doi:10.1136/bmj.b49
Cite this as: BMJ 2009;338:b49

Analysis

Patient and public involvement in chronic illness: beyond the expert patient

¹ University College London, London N19 5LW

Coping with a long term illness requires much more than medical management. Trisha Greenhalgh looks at different models of patient involvement and argues that we need a wider approach

The first 150 words of the full text of this article appear below.

It is a truth universally acknowledged that patients with chronic illness should be involved in their care. It is also increasingly accepted that the public (as individuals, communities, and the voluntary sector) should be involved in designing, delivering, and evaluating services for chronic illness and in creating the conditions to support healthy living. In this article I examine these truths about patient and public involvement from four different perspectives: self management (drawing on biomedical and cognitive psychology), coping (sociology and narrative traditions), whole systems approaches (social ecology), and critical public health (table). The article is based on my own reflections and analysis, but draws on several systematic reviews and meta-analyses on self management, patient empowerment, and community empowerment, as well as literature on illness narrative.^{1 2 3 w1-w16}

View this table:   Different perspectives on patient and public involvement in preventing and managing chronic illness

 
Involving patients and the public in preventing and managing chronic illness . . . [Full text of this article]

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