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Published 8 July 2008, doi:10.1136/bmj.a718
Cite this as: BMJ 2008;337:a718
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A young woman, just making ends meet and coping with four children, signed up to a breast cancer study where she would have to take two big pills every day for two years and show up for numerous frequent tests. Why would she put herself through that, wondered the researcher who went to obtain her consent. "Im doing it for my daughter" said the mother, clearly expecting the study to yield usable, meaningful, and accessible evidence that might help prevent breast cancer in young women. Would she have consented so readily if she knew that some studies are never published and that many are reported so poorly that they are barely read and never used? This tale was told by that same researcher, Davina Ghersi, coordinator of the World Health Organization international clinical trials registry,1 at a meeting in London last month. Dr Ghersi was there to help launch the
Trish Groves, deputy editor
1 BMJ, London WC1H 9JR
tgroves@bmj.com
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