BMJ  2007;335:411-412 (1 September), doi:10.1136/bmj.39316.472361.80

Editorials

Chronic fatigue syndrome or myalgic encephalomyelitis

NICE guidelines pave the way forward for patients and doctors

The first 150 words of the full text of this article appear below.

The uncertainty inherent in making a diagnosis of chronic fatigue syndrome (CFS) is reflected by the variety of names (such as myalgic encephalomyelitis; ME) it has been given. The names reflect the hope that such labels can impose some certainty where little exists. Many doctors are reluctant to make a diagnosis of CFS, with half not even believing it exists.1 The consequences of this uncertainty and reluctance have been that patients hear mixed messages and often receive poor, if any, care.2 It is therefore a welcome relief that the National Institute for Health and Clinical Excellence (NICE) has just published clinical guidelines on the diagnosis and management of this disease.3 In this week's BMJ, Baker and Shaw summarise the guidelines.4

How has the development of these guidelines come about? Eleven years ago, three UK royal colleges agreed that CFS/ME existed as an independent diagnosis and that treatments were possible.5 . . . [Full text of this article]

Peter White, professor of psychological medicine1, Maurice Murphy, consultant physician1, Jill Moss, founding chair2, George Armstrong, co-chair3, Sir Peter Spencer, chief executive officer3

1 Barts and the London NHS Trust and Queen Mary School of Medicine and Dentistry, St Bartholomew's Hospital, London EC1A 7BE, 2 Association of Young People with ME, PO Box 5766, Milton Keynes, MK10 1AQ, 3 Action for ME, Bristol BS1 6BY

p.d.white@qmul.ac.uk


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Relevant Article

Diagnosis and management of chronic fatigue syndrome or myalgic encephalomyelitis (or encephalopathy): summary of NICE guidance
R Baker and E J Shaw
BMJ 2007 335: 446-448. [Extract] [Full Text] [PDF]

Rapid Responses:

Read all Rapid Responses

Regarding the PACE Trial
Tom P Kindlon
bmj.com, 2 Sep 2007 [Full text]
NICE Guidelines fail ME
Sue Waddle
bmj.com, 2 Sep 2007 [Full text]
"CFS Guidelines" Irrelevant to Actual ME Disease
Helen Borel, RN,PhD
bmj.com, 4 Sep 2007 [Full text]
Missed chance
Andrew Ashley
bmj.com, 6 Sep 2007 [Full text]
Survey data does not support their claims
Annette L Barclay
bmj.com, 7 Sep 2007 [Full text]
Re: Survey data does not support their claims
Giuseppe Melecci
bmj.com, 11 Sep 2007 [Full text]
WHO is relieved by NICE?
Douglas T Fraser
bmj.com, 13 Sep 2007 [Full text]
PACE, NICE and FINE : Patients Perspective.
R M Cox
bmj.com, 12 Sep 2007 [Full text]
Imprudent Neglect of CFS History
Erik Johnson
bmj.com, 15 Sep 2007 [Full text]
Re: WHO is relieved by NICE?
Giuseppe Melecci
bmj.com, 15 Sep 2007 [Full text]
Re: WHO is relieved by NICE?
Dr Speedy
bmj.com, 22 Sep 2007 [Full text]
ME and Psychiatry
Michael Morris
bmj.com, 23 Sep 2007 [Full text]
SORRY South Australia
Dr Speedy
bmj.com, 25 Sep 2007 [Full text]
Actometers or pedometers should be used in rehabilitation studies in the field to check whether the interventions are actually leading to (substantial) increases in activity levels
Tom Kindlon
bmj.com, 30 Sep 2007 [Full text]
PSYCHIATRISTS SAY: CBT for ME does NOT work
Tessa Vinicius
bmj.com, 2 Oct 2007 [Full text]
ME as an inclusion of CFS
Les O SIMPSON
bmj.com, 3 Oct 2007 [Full text]
Miscommunications and Misunderstandings
Douglas T Fraser
bmj.com, 5 Oct 2007 [Full text]
Chlamydia pneumoniae infection a treatable cause of Chronic Fatigue Syndrome
John E Tovey
bmj.com, 24 Oct 2007 [Full text]



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