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BMJ 2007;334:1270-1271 (16 June), doi:10.1136/bmj.39188.741944.47
Emma Wicks, expert patient adviser
Cystic Fibrosis Trust, Bromley, Kent BR1 1BY
ewicks@cftrust.org.uk
| The first 150 words of the full text of this article appear below. |
I was lucky enoughthough my parents did not think so at the timeto be diagnosed at two days old. The right information at diagnosis is crucial. After being told their daughter had a disease whose name they could not spell, and with no information from the hospital, my parents found out about it for themselves. Parents nowadays might use the internet; mine went to the library. The book they found, printed 15 years earlier, told them to abandon all hope and not become too attached to me.
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