BMJ  2006;333:692 (30 September), doi:10.1136/bmj.38975.459688.68

Commentary

Parents' view

S Ellis, consultant rheumatologist1

1 Lister Hospital, Stevenage, Herts SG1 4AB Spencer.ellis@nhs.net

Patient's parents with the support of S Ellis

The first 150 words of the full text of this article appear below.

When doctors asked us to participate we agreed without hesitation, knowing that it would bring new knowledge to the doctors and patients. When our daughter was first admitted to hospital, we thought she had an infection that could be simply and quickly cured. However, as time went on and all the tests returned negative, it became clear that there was something more sinister and it became increasingly frustrating that doctors could not come up with a definite diagnosis despite numerous investigations.1

As she developed many rare complications associated with this illness, we naturally lost confidence in our attending doctors. Although the diagnosis of adult onset Still's disease was made, we still sought a second medical opinion because of our daughter's deterioration.

Despite her complications, we were reassured and kept regularly informed of her development and progress. Now, we are working together with the doctors for further improvement.

Competing interests: None . . . [Full text of this article]


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