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BMJ 2006;332:238 (28 January), doi:10.1136/bmj.332.7535.238-b
| The first 150 words of the full text of this article appear below. |
EditorIn the previous letter Galbraith et al identify a further major obstacle and hindrancethe procedures for gaining honorary contracts required by all those conducting research in the NHS.1
As a voluntary, independent, self employed individual patient-researcher, I have been a steering group patient member in various research projects at different institutions since 1995. In November 2005 I received from a university research and commercial division "duplicate originals" of a formal agreement for signature for participation as a steering group member in a Department of Health funded project to undertake a systematic review. To say that the requirements were onerous understates the case.
Public involvement in research is encouraged, indeed stipulated by the Department of Health and related research commissioning bodies. The National Cancer Research Institute and National Cancer Research Network have defined the practicalities of involving members of their consumer liaison group in research. This includes setting out in detail,
Hazel Thornton, independent advocate for quality in research and healthcare
Rowhedge, Colchester CO5 7EA hazelcagct@keme.co.uk
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