BMJ  2005;330:1007-1011 (30 April), doi:10.1136/bmj.330.7498.1007

Clinical review

Illness trajectories and palliative care

Scott A Murray, clinical reader1, Marilyn Kendall, research fellow1, Kirsty Boyd, honorary clinical senior lecturer1, Aziz Sheikh, professor of primary care research and development1

1 Division of Community Health Sciences, General Practice Section, University of Edinburgh, Edinburgh EH8 9DX

Correspondence to: S Murray Scott.Murray@ed.ac.uk

The first 150 words of the full text of this article appear below.

Introduction

When people with life threatening illnesses and their carers ask about prognosis ("How long have I got?"), they are often doing more than simply inquiring about life expectancy. Within this question is another, often unspoken, question about likely patterns of decline ("What will happen?"). One aid to answering both questions may be through the use of typical illness trajectories. Thinking in terms of these trajectories provides a broad timeframe and patterns of probable needs and interactions with health and social services that can, conceptually at least, be mapped out towards death.

Such frameworks may help clinicians plan and deliver appropriate care that integrates active and palliative management. If patients and their carers gain a better understanding by considering illness trajectories this may help them feel in greater control of their situation and empower them to cope with its demands. An important implication for service planners is that different models of . . . [Full text of this article]

Methods

Different trajectories for different diseases
Trajectory 1: short period of evident decline, typically cancer
Trajectory 2: long term limitations with intermittent serious episodes
Trajectory 3: prolonged dwindling

Clinical implications

-->-->Trajectories allow practical planning for a "good death"
Understanding the likely trajectory may be empowering for patient and carer

Limitations of the trajectory approach

Other dimensions of needs may have different trajectories

Implications for service planning and development

One size may not fit all
Planning care in advance may prevent admissions
Transferable lessons

Conclusions


Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati    What's this?

Relevant Articles

Care for all at the end of life
Scott A Murray and Aziz Sheikh
BMJ 2008 336: 958-959. [Full Text] [PDF]

Getting services right for those sick enough to die
Sydney Dy and Joanne Lynn
BMJ 2007 334: 511-513. [Extract] [Full Text] [PDF]

Advance care planning in primary care
Scott A Murray, Aziz Sheikh, and Keri Thomas
BMJ 2006 333: 868-869. [Extract] [Full Text] [PDF]

Illness trajectories are also valuable in critical care
Stephen J Streat
BMJ 2005 330: 1272. [Extract] [Full Text]

Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community
Scott A Murray, Kirsty Boyd, Marilyn Kendall, Allison Worth, T Fred Benton, and Hans Clausen
BMJ 2002 325: 929. [Abstract] [Full Text] [PDF]

This article has been cited by other articles:

  • Murtagh, F. E. M., Murphy, E., Sheerin, N. S. (2008). Illness trajectories: an important concept in the management of kidney failure. Nephrol Dial Transplant 0: gfn532v1-gfn532 [Full text]  
  • Van den Block, L., Deschepper, R., Bossuyt, N., Drieskens, K., Bauwens, S., Van Casteren, V., Deliens, L. (2008). Care for Patients in the Last Months of Life: The Belgian Sentinel Network Monitoring End-of-Life Care Study. Arch Intern Med 168: 1747-1754 [Abstract] [Full text]  
  • Curtis, J. R. (2008). Palliative and end-of-life care for patients with severe COPD. Eur Respir J 32: 796-803 [Abstract] [Full text]  
  • Simpson, A.C., Rocker, G.M. (2008). Advanced chronic obstructive pulmonary disease: rethinking models of care. QJM 101: 697-704 [Abstract] [Full text]  
  • Ferrand, E., Jabre, P., Vincent-Genod, C., Aubry, R., Badet, M., Badia, P., Cariou, A., Ellien, F., Gounant, V., Gil, R., Jaber, S., Jay, S., Paillaud, E., Poulain, P., Regnier, B., Reignier, J., Socie, G., Tardy, B., Lemaire, F., Brun-Buisson, C., Marty, J., for the French Mort-a-l'Hopital Group, (2008). Circumstances of Death in Hospitalized Patients and Nurses' Perceptions: French Multicenter Mort-a-l'Hopital Survey. Arch Intern Med 168: 867-875 [Abstract] [Full text]  
  • Murray, S. A, Sheikh, A. (2008). Care for all at the end of life. BMJ 336: 958-959 [Full text]  
  • Mayland, C., Williams, E., Ellershaw, J. (2008). How well do current instruments using bereaved relatives' views evaluate care for dying patients?. Palliat Med 22: 133-144 [Abstract]  
  • Docherty, A., Owens, A., Asadi-Lari, M., Petchey, R., Williams, J., Carter, Y. H (2008). Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliat Med 22: 153-171 [Abstract]  
  • Currow, D. C., Agar, M., Sanderson, C., Abernethy, A. P. (2008). Populations who die without specialist palliative care: does lower uptake equate with unmet need?. Palliat Med 22: 43-50 [Abstract]  
  • Fitzsimons, D., Mullan, D., Wilson, J.S., Conway, B., Corcoran, B., Dempster, M., Gamble, J., Stewart, C., Rafferty, S., McMahon, M., MacMahon, J., Mulholland, P., Stockdale, P., Chew, E., Hanna, L., Brown, J., Ferguson, G., Fogarty, D. (2007). The challenge of patients' unmet palliative care needs in the final stages of chronic illness. Palliat Med 21: 313-322 [Abstract]  
  • Harris, D. (2007). Forget me not: palliative care for people with dementia. Postgrad. Med. J. 83: 362-366 [Abstract] [Full text]  
  • Munday, D., Dale, J., Murray, S. (2007). Choice and place of death: individual preferences, uncertainty, and the availability of care. JRSM 100: 211-215 [Full text]  
  • Seamark, D. A, Seamark, C. J, Halpin, D. M G (2007). Palliative care in chronic obstructive pulmonary disease: a review for clinicians. JRSM 100: 225-233 [Abstract] [Full text]  
  • Workman, S. (2007). Researching a good death. BMJ 334: 485-486 [Full text]  
  • Dy, S., Lynn, J. (2007). Getting services right for those sick enough to die. BMJ 334: 511-513 [Full text]  
  • Murray, S. A, Chinn, D. J, Sheikh, A. (2006). Access to psychological and psychiatric services needs tobe improved for the dying. JRSM 99: 601-601 [Full text]  
  • Zapka, J. G., Carter, R., Carter, C. L., Hennessy, W., Kurent, J. E., DesHarnais, S. (2006). Care at the end of life: focus on communication and race.. J Aging Health 18: 791-813 [Abstract]  
  • Murray, S. A, Sheikh, A., Thomas, K. (2006). Advance care planning in primary care.. BMJ 333: 868-869 [Full text]  
  • Alvarez, M. P., Agra, Y. (2006). Systematic review of educational interventions in palliative care for primary care physicians.. Palliat Med 20: 673-683 [Abstract]  
  • Van den Block, L., Bilsen, J., Deschepper, R., Van Der Kelen, G., Bernheim, J. L., Deliens, L. (2006). End-of-Life Decisions Among Cancer Patients Compared With Noncancer Patients in Flanders, Belgium. JCO 24: 2842-2848 [Abstract] [Full text]  
  • Rosenwax, L., McNamara, B. (2006). Who receives specialist palliative care in Western Australia - and who misses out. Palliat Med 20: 439-445 [Abstract]  
  • Johnson, M., Houghton, T (2006). Palliative care for patients with heart failure: description of a service. Palliat Med 20: 211-214 [Abstract]  
  • Streat, S. J (2005). Illness trajectories are also valuable in critical care. BMJ 330: 1272-1272 [Full text]  

Rapid Responses:

Read all Rapid Responses

Illness trajectories and critical care
Stephen J Streat
bmj.com, 29 Apr 2005 [Full text]
Illness trajectories for AIDS
Natalya Dinat, et al.
bmj.com, 9 May 2005 [Full text]
Late referrals for Specialist Palliative Care for patients with non malignant conditions
Dr. Lulu Kreeger, et al.
bmj.com, 24 May 2005 [Full text]



Student BMJ

Asylum seekers' care

UK medical students have published unreleased government plans to restrict failed asylum seekers' access to medical care

www.student.bmj.com

Listen to the latest BMJ Interview