BMJ 2003;326:8 ( 4 January )

News

Family finds hospital willing to give experimental CJD treatment

Owen Dyer, London
The first 150 words of the full text of this article appear below.

A teenager suffering from variant CJD, the human form of mad cow disease, is to have unprecedented treatment with a drug injected into his brain after the high court in Belfast gave the go-ahead.

Jonathan Simms, 18, from Belfast, is expected to have the treatment with pentosan polysulphate within weeks after a Northern Ireland hospital agreed that it could be carried out in its operating theatres.

His family, which is desperate for him to have the pioneering treatment in a last attempt to slow down the progress of the disease, was forced back to court after winning a ruling in the English high court the previous week. The hospital wanted the Northern Ireland high court's approval because the English ruling has no effect in the province, which is a separate legal jurisdiction.

Jonathan's family was one of two fighting for the treatment for their teenage children who have variant Creutzfeldt-Jakob disease . . . [Full text of this article]


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