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EDITOR
As someone who is guilty of adding to the large number of
disease specific quality of life (QOL) scales, let me add a note of
caution to the pleas made by Garratt et al for guidance and
recommendations for the users of these scales
however understandable that plea is.1 QOL scales are not like thermometers or
spirometers, where the reading is independent of the type of patient.
A QOL scale is just a shopping bag of experiences (or questions) that
are put together to form a scale, rather like the retail price index.
The retail price index is a shopping bag of goods for an "average"
shopper, even though most people are not that average shopper. The
scale value obtained from a QOL scale depends on the overlap between
the items in a scale and the patient's own experience of disease. So,
for example, if there is a