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Family friendly hearing seervices are needed in the United Kingdom
| The first 150 words of the full text of this article appear below. |
EDITOR
We are the parents of a baby with profound sensorineural
deafness, and the article by Fortnum et al rang many
bells.1 The absence of universal screening of newborn
infants seems a national scandal to us. If it had been in place we
would not have waited nearly a year to discover that our baby has
profound deafness. A year is a long time to lose when the early years
are critical to the development of language and speech. The family
friendly culture and seamless collaboration aspired to in the pilot
protocols for universal screening seem a long way off. Lack of urgency
from health professionals, a system that designs delay into it rather than managing delay out, and no real focus on customers or families are
the dominant characteristics of the health service we have encountered.
Simple changes could make all the difference. Medical
professionals are still dictating