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are additional criteria needed for
assessing evidence based clinical practice guidelines?
Ole Frithjof Norheim Division for General
Practice, University of Bergen, N-5009 Bergen, Norway
ole.norheim@isf.uib.no
| The first 150 words of the full text of this article appear below. |
In 1995 the case of "Child B" reached the headlines of
British newspapers and stirred public debate about the decision to withhold a second bone marrow transplant from a child with acute myeloid leukaemia.
1 2
The decision was based on the
weakness of scientific and clinical evidence of the treatment's
efficacy. It was also argued that the decision was in accordance with
guidelines for patient selection that were already in place for such
specialised treatment. A central issue is why judgments such as this
are not perceived as legitimate, even when they are based on clinical guidelines. The explanation may lie partly in the fact that the guidelines used have not been developed through a process considered as
legitimate. Why should the patient, her parents, or the public accept
some little known guidelines developed within the closed communities of
medical experts? This issue is valid for all types of clinical practice
guidelines.
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