Participatory research maximises community and lay involvement

BMJ 1999;319:774-778 ( 18 September )

Education and debate

Participatory research maximises community and lay involvement

Ann C Macaulay, associate professor ^a, Laura E Commanda, policy adviser ^b, William L Freeman, director ^c, Nancy Gibson, chairwoman ^d, Melvina L McCabe, associate professor ^e, Carolyn M Robbins, community advocate ^f, Peter L Twohig, research associate ^g, for the North American Primary Care Research Group.

^a Department of Family Medicine, McGill University, Herzl Family Practice Centre, SMBD Jewish General Hospital, 3755 Cote Ste Catherine, Montreal, Quebec, Canada H3T 1E2, ^b PO Box 37, Serpent River First Nation, Cutler, Ontario, Canada P0P 1BO, ^c Research Program, Indian Health Service, Public Health Service, 5300 Homestead Road NE, Albuquerque, NM 87110-1293, USA, ^d Department of Human Ecology, 3-02 Human Ecology Building, University of Alberta, Edmonton, Alberta T6G 2N1, Canada, ^e University of New Mexico, Department of Family and Community Medicine, 2400 Tucker Ave NE, Albuquerque, NM 87131, USA, ^f 2400 Rio Grande Blvd NW PMB#1-138, Albuquerque, NM 87104-3243, USA, ^g Department of Family Medicine, Dalhousie University, 8th Floor, Abbie J Lane Building, 5909 Jubilee Road, Halifax, Nova Scotia, Canada B3H 2E2

Correspondence to: Dr Macaulay mcnn@musica.mcgill.ca

The first 150 words of the full text of this article appear below.

Participatory research attempts to negotiate a balance between developing valid generalisable knowledge and benefiting thecommunity that is being researched and to improve research protocolsby incorporating the knowledge and expertise of community members.For many types of research in specific communities, these goalscan best be met by the community and researcher collaboratingin the research as equals.

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Methods

This integrative review is based on a search of medical, nursing, and social science databases and ethical research codes.The material selected had to be significant theoretical works,source documents, or concrete examples of participatory research.We assessed the texts on the basis of our own experiences as membersof Native communities (LEC, MLMcC, CMR) and researchers (WLF,NG, ACM, MLMcC, PLT) in participatory research projects. The preliminarydraft was reviewed by a wide range of researchers and communitymembers. The members of the North American Primary Care ResearchGroup reviewed . . . [Full text of this article]

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