Editorials

Whose data are they anyway?

"I like taking part in studies because it's for the greater good, like giving blood."¹

As reports of medical research show, there are almost no limits to what patients will put up with if they believe that their actions may benefit others. Seemingly, no questionnaire is too probing, no programme of clinic visits and tests too gruelling, and no drug too vile to stop patients volunteering for research.

Yet much of their goodwill is wasted. Many more research projects are begun than are completed, many more projects are completed than are written up, and many more papers are written up than are published. Of those that are published many are of poor quality,² and few provide their raw data in a form that readers could use to check the authors' claims. Patients could justifiably argue that . . . [Full text of this article]

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Relevant Article

Managing UK research data for future use

Trish Groves
BMJ 2009 338: b1252. [Extract] [Full Text]

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