BMJ  2005;330:171 (22 January), doi:10.1136/bmj.38265.493773.8F (published 16 November 2004)

Paper

Patient initiated outpatient follow up in rheumatoid arthritis: six year randomised controlled trial

Sarah Hewlett, senior lecturer1, John Kirwan, reader1, Jon Pollock, principal lecturer in epidemiology2, Kathryn Mitchell, research sister1, Maggie Hehir, research sister1, Peter S Blair, medical statistician3, David Memel, lead research general practitioner4, Mark G Perry, research fellow1

1 University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol BS2 8HW, 2 Faculty of Health and Social Care, University of the West of England, Bristol BS16 1DD, 3 University of Bristol Institute of Child Health, UBHT Education Centre, Bristol Royal Infirmary, Bristol, 4 Air Balloon Surgery, Bristol BS5 7PD

Correspondence to: S Hewlett Sarah.Hewlett{at}bristol.ac.uk

Objectives To determine whether direct access to hospital review initiated by patients with rheumatoid arthritis would result in improved clinical and psychological outcome, reduced overall use of healthcare resources, and greater satisfaction with care than seen in patients receiving regular review initiated by a rheumatologist.

Design Two year randomised controlled trial extended to six years.

Setting Rheumatology outpatient department in teaching hospital.

Participants 209 consecutive patients with rheumatoid arthritis for over two years; 68 (65%) in the direct access group and 52 (50%) in the control group completed the study (P = 0.04).

Main outcome measures Clinical outcome: pain, disease activity, early morning stiffness, inflammatory indices, disability, grip strength, range of movement in joints, and bone erosion. Psychological status: anxiety, depression, helplessness, self efficacy, satisfaction, and confidence in the system. Number of visits to hospital physician and general practitioner for arthritis.

Results Participants were well matched at baseline. After six years there was only one significant difference between the two groups for the 14 clinical outcomes measured (deterioration in range of movement in elbow was less in direct access patients). There were no significant differences between groups for median change in psychological status. Satisfaction and confidence in the system were significantly higher in the direct access group at two, four, and six years: confidence 9.8 v 8.4, 9.4 v 8.0, 8.7 v 6.9; satisfaction 9.3 v 8.3, 9.3 v 7.7, 8.9 v 7.1 (all P < 0.02). Patients in the direct access group had 38% fewer hospital appointments (median 8 v 13, P < 0.0001).

Conclusions Over six years, patients with rheumatoid arthritis who initiated their reviews through direct access were clinically and psychologically at least as well as patients having traditional reviews initiated by a physician. They requested fewer appointments, found direct access more acceptable, and had more than a third fewer medical appointments. This radical responsive management could be tested in other chronic diseases.


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