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Information needs of cancer patients in west Scotland: cross sectional survey of patients' views

^a Radiotherapy Radiography, Faculty of Health, Glasgow Caledonian University, Glasgow G13 1PP, ^b Beatson Oncology Centre, Western Infirmary, Glasgow G11 6NT, ^c West of Scotland Cancer Surveillance Unit, Ruchill Hospital, Glasgow G20 9NB, ^d CRC Communication and Counselling Research Centre, Department of Oncology, University College London Medical School, London W1P 7PL

Correspondence to: Dr Symonds.

Abstract

Objective: To assess the needs of patients with cancer for information about their condition.
Design: Cross sectional survey of patients' views by means of semistructured interview with questionnaire.
Setting: A regional cancer centre and two university hospitals in west Scotland.
Subjects: 250 (93%) of 269 cancer patients invited to participate in study who were selected by age, sex, socioeconomic status, and tumour site to be representative of cancer patients in west Scotland.
Main outcome measures: Patients' need to know whether they had cancer, the medical name of their illness, progress through treatment, how treatment works, side effects, chances of cure, and treatment options.
Results: 79% (95% confidence interval 73% to 84%) of patients wanted as much information as possible, and 96% (93% to 98%) had a need or an absolute need to know if they had cancer. Most patients also wanted to know the chance of cure (91% (87% to 94%)) and about side effects of treatment (94% (90% to 97%)). When the replies were cross tabulated with patients' age, sex, deprivation score, and type of treatment there was a linear trend for patients from more affluent areas to want more information and those from deprived areas to want less. There was a strong preference for diagnosis of cancer to be given by a hospital doctor (60% (53% to 66%).
Conclusion: Almost all patients wanted to know their diagnosis, and most wanted to know about prognosis, treatment options, and side effects.

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Effect of different forms of information produced for cancer patients on their use of the information, social support, and anxiety: randomised trial

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